“Though she be but little, she is fierce”
– William Shakespeare
I am a 22-year-old mother of a Single Ventricle baby.
My daughter Elentiya, born September 30, 2013, was diagnosed in utero with Hypoplastic Left Heart Syndrome, with mitral and aortic atresia. She is my first child, and my husband’s second. I have never been more frightened, enamoured, depressed, or ecstatic as I have been in the past half a year. Elentiya was named after a character in a book series called Throne of Glass by Sarah J. Maas. The meaning she gave it, was “Spirit that Cannot be Broken,” and it could not ring more true for our daughter. I am honoured to have been picked as a guest blogger for this! Not only will this be a way for us to connect as parents, but it will also be a way for us to hash out our fears, pain, achievements and joy.
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